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A 501c3 NON-PROFIT ORGANIZATION

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Join Our Focus on HOPE and Impact Campaign

At Love Never Sinks, hope is more than a word — it’s the fuel that keeps families going and the foundation of everything we do for the Lesch-Nyhan community.

This season, we're launching our focus on Hope and Impact Campaign.

Every dollar helps us:

Support families facing the daily challenges of Lesch-Nyhan

Build and strengthen our research programs

Expand our Medical & Scientific Advisory Board efforts

Create resources that make a real difference in understanding and treating this rare disease

Your generosity brings hope where it’s needed most. Together, we can lift families, drive meaningful research forward, and continue serving the Lesch-Nyhan community with compassion and purpose.

If you’re able, please consider donating today.

Hope grows when we grow it together.

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Learn

Learn about Lesch-Nyhan: From the fundamentals and typical signs to current research, our resources help families stay informed and empowered.

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Navigate

From first steps after diagnosis to daily support with tools, therapies, and behaviors, we provide families guidance—and a QR code for wheelchairs so others can quickly learn about Lesch-Nyhan.

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Resources

Explore helpful Lesch-Nyhan resources created together with families, doctors, and researchers — including videos, guides, and studies.

a boy with Lesch-Nyhan Syndrome playing Baseball with a coach and a sign that says "go Jack"

Programs

Through tailored programs, Love Never Sinks supports families living with Lesch-Nyhan with resources, guidance, events, and connections.

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Love Never Sinks works to create meaningful impact for families affected by Lesch-Nyhan disease through connection, knowledge, and collaboration.

Our Goals are to:

Support families through outreach, community programs, and financial and bereavement assistance.

Advance research by funding scientific studies and preparing the community for participation in future discoveries.

Build awareness of Lesch-Nyhan disease to promote understanding and earlier diagnosis.

Foster collaboration between families, researchers, and advocates to accelerate progress and strengthen the rare disease community.

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“Together, we aim to ensure that every family feels supported — and that every step in science brings us closer to answers and hope.”
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Latest LNS Program Updates

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Ways to be Involved in Research

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Supporting Children, Adults, and Families Living with Lesch-Nyhan

Love Never Sinks is committed to empowering families affected by Lesch-Nyhan, championing greater awareness and actionable solutions to improve their quality of life.

Together, we can create meaningful change and offer hope to those impacted by this rare disorder.

Learn more about what we do
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Lesch-Nyhan Info Welcome Page
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