Frequently Asked Questions

  • 1. Community Connection & Emotional Support

    Supportive community programs to help families feel connected and less isolated:

    • Stay Connected: Quarterly newsletters with updates, resources, and news. Love Never Sinks

    • Birthday Club: Personalized birthday cards sent to community members. Love Never Sinks

    • Stories from the Heart: Family stories that offer encouragement and shared experience. Love Never Sinks

    • Bereavement Memorials: Honors and remembrance for loved ones who have passed. Love Never Sinks

    • Holiday Gift Exchange: Annual Christmas gift exchange to foster connection and joy. Love Never Sinks

    • WhatsApp Updates & Community Hubs: Real-time updates and support group channels. Love Never Sinks

    2. Information, Education & Resources

    Educational tools and guidance to help families navigate LND:

    • Past Presentations & Webinars: Access to recordings and expert talks related to Lesch-Nyhan. Love Never Sinks

    • Resource Collections: Links to scientific papers, videos, guides, and other informational tools. Love Never Sinks

    • Printable Guides and Info Packets: Materials for understanding the disease and explaining it to others. Love Never Sinks

    • QR Code Business Cards: To help explain LND quickly to caregivers or professionals. Love Never Sinks

    3. Practical & Financial Support

    Help to reduce burdens on families:

    • Application for Assistance: Families can apply for financial aid, medical equipment, or other needed supports. Love Never Sinks

    • Direct Support Efforts: Funding and connections to help obtain resources that improve quality of life. Love Never Sinks

    4. Research Advocacy & Collaboration

    Love Never Sinks promotes research and helps families stay involved:

    • Research Updates: Information on studies and scientific efforts supported by the organization. Love Never Sinks

    • Partnerships with Researchers and Clinicians: They connect families with experts to improve understanding and care. Love Never Sinks+1

    • Fundraising for Research Grants: Supporting and funding research projects aimed at meaningful treatments. Love Never Sinks

    5. Awareness & Advocacy

    • Public Awareness Initiatives: Participating in events (like bike rides) and advocacy to raise awareness and funding. Love Never Sinks

    • Stories, Blogs, and Outreach: Sharing real-life perspectives to educate others and reduce isolation. Love Never Sinks

  • Here are the main ways you can donate to Love Never Sinks to support their work helping families affected by Lesch-Nyhan disease and advancing research, community support, and awareness: Love Never Sinks

    💻 Online Donation (Direct)

    • Visit the official Love Never Sinks donation page on their website — this is the easiest way to make a one-time or recurring gift online. Love Never Sinks

    💙 Donate by Mail

    • If you prefer to send a check:

      Love Never Sinks 1911 West Wilson Street #406 Batavia, IL 60510, USA

      Include your contact info so they can send a receipt and thank-you.Love Never Sinks

    💼 Workplace Giving or Donor-Advised Funds

    • You can donate through your employer’s giving platform (e.g., Benevity) or a donor-advised fund, and many companies will match your donation, potentially increasing your impact. Love Never Sinks

    🚴‍♂️ Fundraising Events

    • Support or donate through events like Events, Bike Rides and Walks where Love Never Sinks teams raise funds for research and family support. For more information contact us @ LNS@LoveNeverSinks.Org or check out our calendar

    💻 Third-Party Fundraisers

    • Platforms like Givebutter host campaigns (e.g., holiday campaigns, memorial giving pages, bracelets, Giving Tuesday fundraisers) that let you donate to Love Never Sinks through a dedicated fundraising page. Givebutter+1

    💡 Tip: If your employer offers matching gifts, check if Love Never Sinks is eligible — this could double or even triple the value of your support! Love Never Sinks

A young man named Aldo sitting in a wheelchair smiling, with text about his life and medical journey, including the diagnosis of Lesch Nyhan disease, his need for emergency surgery, and the support from Love Never Sinks charity.
Honor a loved one with your gift here

What Your Donations Support

Every gift to Love Never Sinks fuels real progress — in research, in understanding, and in the lives of families affected by Lesch-Nyhan disease. Your generosity has made a lasting impact through grants, partnerships, and community-driven fundraising.

🧫 Research collaborations with leading worldwide experts

🧠 Natural history and registry studies that help researchers better understand disease progression

📊 Research data initiatives led by our collaborations with Doctors and Scientists

🧍‍♀️ Family-led advocacy and research readiness that bridge the gap between families and the lab

💙 Direct support for families, including financial assistance, resources, and community programs that provide hope, connection, and strength

Together, we’re investing in science and in the people, it serves — building a future where every family facing Lesch-Nyhan has access to knowledge, care, and community.

Your kindness can reach even further through your company’s giving program or a donor-advised fund. Many workplaces match donations, allowing your gift to grow—sometimes doubling or even tripling the support that reaches families. You can also recommend a gift through your donor-advised fund to help Love Never Sinks continue offering hope, connection, and research support for those affected by Lesch-Nyhan Syndrome.

Every matched gift helps families feel less alone and brings our community one step closer to understanding and better care. Click below to learn how you can give through your workplace or fund.

Donate via Workplace Giving or Donor-Advised Fund

With your help Love Never Sinks bridges gaps between families, advocates, and supporters of Lesch Nyhan, fostering a network of understanding, support, and research readiness. We believe no one should be alone, empowering individuals to share stories, access vital resources, and uplift one another.

Through our fundraising efforts, we aim to provide essential resources, support services, and advocacy for those impacted by Lesch-Nyhan. Every dollar raised will contribute to programs that enhance understanding, provide practical assistance, and promote research initiatives focused on improving the lives of individuals affected by Lesch Nyhan.

Empower Our Mission and Advocate for the Lesch-Nyhan Community.

Your Donation Fosters Hope and Progress.

Learn more
A young man named Aldo sitting in a wheelchair smiling, with text about his life and medical journey, including the diagnosis of Lesch Nyhan disease, his need for emergency surgery, and the support from Love Never Sinks charity.
A pink paper heart inside a red paper envelope on a black background.

Prefer to Mail Your Donation?

We gladly accept donations by mail! Please send your check to:

Love Never Sinks
1911 West Wilson Street # 406
Batavia, IL 60510, USA

Please include your contact information so we can send you a receipt and a personal thank-you.

Thank you for supporting our mission to connect and uplift families affected by Lesch Nyhan. Your generosity makes a difference!

Wooden alphabet blocks spelling 'THANK YOU' with a yellow heart in the center on a white background.

Does your Company have a Giving Program?

Double Your Impact Through Benevity

Did you know your employer might match your donation to Love Never Sinks? Many companies use Benevity to support employee giving and volunteerism—making it easy to give back and even double your impact.

Your generosity can go even further through your company’s giving program or a donor-advised fund. Many employers match charitable gifts—sometimes doubling or even tripling your impact. You can also recommend a gift through your donor-advised fund to help Love Never Sinks continue supporting families affected by Lesch-Nyhan Syndrome and advancing research for a brighter future.

Every matched gift brings us closer to hope, understanding, and better care for our community.

Here’s how to get started:

  1. Log in to your company’s giving platform (usually powered by Benevity).

  2. Search for Love Never Sinks in the list of eligible charities.

  3. Choose your donation amount—one-time or recurring.

  4. If your company offers donation matching, you’ve just doubled your gift!

Your support helps families affected by Lesch-Nyhan access resources, community, and hope. Every dollar truly makes a difference.

Thank you for making Love Never Sinks visible. ❤️