Programs and Services
Programs:
Love Never Sinks • Lesch-Nyhan
Love Never Sinks is a nonprofit dedicated to helping families affected by Lesch-Nyhan disease.
We understand the challenges that come with this rare condition—and we’re here to make sure no family ever feels alone on the journey.
Our mission is to bring families together, share knowledge, and provide hope. We connect parents and caregivers to resources, medical experts, and one another, helping families find strength, understanding, and support. We also work closely with researchers and doctors to move science forward and build a brighter future for everyone living with Lesch-Nyhan.
Every donation helps us continue this important work—whether it’s sending care packages, supporting family connections, or advancing research that gives hope for tomorrow. Together, we can make a difference and remind every family that love never sinks.
Programs and Services
You are here (read below)
Donate
Supporting Community
Programs and Services
Stay Connected
Newsletter Sign Up: Subscribe to our quarterly newsletter for the latest news, updates, and resources.
Birthday Club: Celebrate your special day with a personalized birthday card from our community.
Blog: Navigating Lesch-Nyhan: Family, Courage, and Unshakable Love
Real time WhatsApp Love Never Sinks Updates send us an email LNS@LoveNeverSinks.Org to be added to the group
Community and Support
Bereavement Memorial: Honor the memory of loved ones affected by Lesch-Nyhan syndrome through our memorial services.
Christmas Gift Exchange: Connect with other families during the holiday season through our annual gift exchange.
Community Hub check out what is coming up and slide decks from past meetings.
QR Code Business card to help explain LN to people in the Community
Community Meeting Slide Decks see Slide Decks from previous meetings
Real time WhatsApp Love Never Sinks Updates send us an email to be added to the group
Stories from the Heart Each story shared here comes straight from the heart — moments of struggle, strength, and hope from families touched by Lesch-Nyhan. Their voices remind us that love never sinks, even in the hardest times. We invite you to read, feel, and be inspired by their journeys — and to share your own story so together we can one day create a book that celebrates the courage and love within our community.
Learn More
Past Presentations: Access recordings of previous educational presentations and webinars on various topics related to Lesch-Nyhan syndrome.
Resources Explore a collection of valuable resources, including links to scientific papers, informative videos on Lesch Nyhan, printable guides, connections to global support groups, and financial assistance options.
Studies and Research Stay informed about the latest studies and research projects Love Never Sinks has supported. Here, we share updates on ongoing and completed research, breakthroughs, and collaborations aimed at advancing understanding and treatment options for our community.
Need Help?
Application for Assistance: Apply to Love Never Sinks for financial aid, medical equipment, or other resources to support your family's needs.
Mission Impact: Help us learn more about the impact of our programs on individuals and families affected by Lesch-Nyhan syndrome.
Support Your Community & Love Never Sinks
Donation Page: Make a generous contribution to support our mission and programs.
Volunteer: Lend your time and heart to support families, connect the community, and make a difference with Love Never Sinks
Share your Story Share your family’s journey with Lesch-Nyhan disease and help others feel less alone. Love Never Sinks invites parents and caregivers to contribute their stories of strength, hope, and connection.
Media Release: Fill out our media release to share your story with the community.
Ideas for Future Presentations: Submit your ideas for future educational presentations and webinars.
Fundraise: Organize a fundraising event or campaign to help raise awareness and funds.
Events
Visit the MDBR Bike Ride Page: Learn more about our annual bike ride event and how to participate.
Merch
Show Your Support with Love Never Sinks Merchandise! Get your very own Love Never Sinks t-shirt or sweatshirt! Wearing our merch is a great way to spread awareness and show solidarity with families affected by Lesch Nyhan. Plus, all proceeds go directly to supporting our mission. Visit our website to shop now and make a difference today!
Check out the 2025 Million Dollar Bike Ride
Love Never Sinks is a nonprofit organization dedicated to supporting families affected by Lesch-Nyhan disease. We bring together families, researchers, and medical professionals to build understanding, share resources, and advance research toward better treatments and quality of life.
Our mission is to create a connected, informed, and empowered community. We do this by helping families navigate the challenges of Lesch-Nyhan through education, emotional support, and practical resources—while also fostering collaboration in scientific research.
Through programs that focus on family support, awareness, and research readiness, Love Never Sinks works to ensure no family faces this rare disease alone and that every effort moves us closer to meaningful progress for the Lesch-Nyhan community.
Connect with us
LNS@LoveNeverSinks.Org