We are dedicated to raising awareness, advancing treatment & supporting families living with Lesch-Nyhan Syndrome.
Advocates for Lesch-Nyhan Syndrome
Love Never Sinks is a resource for families who have children who are suffering from Lesch-Nyhan Syndrome. We are an advocacy group fighting against Lesch-Nyhan Syndrome.
To all of those who have fought their battle and lost, and to those who continue to fight, we, as a Lesch-Nyhan support group, are here to shed new light.
We are here to provide a safe, shared space for community, education and support of all those who are touched by Lesch-Nyhan.
Learn More About Lesch-Nyhan
We have recently partnered with All Stripes who builds databases of information in order to jumpstart research on rare diseases, including Lesch-Nyhan Syndrome.
The University of Pennsylvania and The Orphan Disease Center - gene therapy.
An Error In the Code - New York Times Article about Lesch-Nyhan.
"Clarksville mom wages war against rare genetic disorder, raises awareness for upcoming clinical trial" article written by founder of Love Never Sinks.