A 501c3

Non-Profit Organization

We are dedicated to raising awareness, advancing treatment & supporting families living with Lesch-Nyhan Syndrome.

Love Heart With Images

Advocates for Lesch-Nyhan Syndrome

Love Never Sinks is a resource for families who have children who are suffering from Lesch-Nyhan Syndrome. We are an advocacy group fighting against Lesch-Nyhan Syndrome.


Mission Statement

To all of those who have fought their battle and lost, and to those who continue to fight, we, as a Lesch-Nyhan support group, are here to shed new light.

We are here to provide a safe, shared space for community, education and support of all those who are touched by Lesch-Nyhan.


Learn More About Lesch-Nyhan

We have recently partnered with All Stripes who builds databases of information in order to jumpstart research on rare diseases, including Lesch-Nyhan Syndrome.

Number 01

The University of Pennsylvania and The Orphan Disease Center - gene therapy.

Number 02

An Error In the Code - New York Times Article about Lesch-Nyhan.

Number 03

"Clarksville mom wages war against rare genetic disorder, raises awareness for upcoming clinical trial" article written by founder of Love Never Sinks.